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Joseph’s story – palliative care for children

Joseph was diagnosed with severe epilepsy when he was three months old. His mother says:
“The most surprising thing I have learnt about paediatric palliative care is that it is not just about endings. Palliative care is really a steady arm to lean on: it supports you to make your time together the best it can be, and it helps families take some control back over their lives.”

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